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Jane and Leigh’s home, where we stayed, was more than comfortable, and also offered a lovely water view over the docks and recreational boats in Cambridge’s small harbor. We soon realized the further advantage of staying in a home, rather than a hotel. The reason was fatigue.
Towards the end of each three-week treatment cycle, I’ve generally been feeling pretty close to normal – with fatigue being the only exception. It’s a side-effect that sneaks up on me. I feel pretty good upon leaving the house, but I tire very easily.
This became very evident while we were visiting Washington College. I had a high level of interest, personally, in seeing the campus – not just for the obvious reason of helping Ania begin to discern what college or university may be right for her, but also for the nostalgia, for Claire and me, of visiting old haunts.
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Finally, feeling out of breath and with my back hurting, I bowed out of the remainder of the tour. I told the others to go on ahead, took a seat inside one of the campus buildings, and waited there for them to finish the tour and join me there.
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During the free time we had in the Cambridge area the next day, we set out to do a little sightseeing, but found that all the museums and tourist sites in this historic, waterfront town were closed (no great surprise, on this off-season weekday). Ordinarily, a walking tour down the streets lined with eighteenth-century houses would have appealed to us, but it was cold and windy and I would never have been able to keep up with the others. At the tourist-information office, we picked up a brochure describing a self-guided driving tour of Underground Railroad sites and locations associated with Harriet Tubman (the African-American slave who escaped her captors and courageously led many other slaves to freedom during the years before the Civil War). That suited us very well, giving us an excuse to explore the unspoiled countryside of Dorchester and Caroline Counties as well as doing something educational with the kids.
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This morning – Sunday – I assist Robin and our guest preacher, the Rev. Susan Thompson, with leading worship. I enjoy a number of conversations with church members after each service, but notice that, as I’m sitting in the chancel during the second service, I’m feeling increasingly tired. I usually feel quite drained after preaching two services – preaching is emotionally exhausting in ways that only those who do it regularly can understand – but this day I’m not even preaching. My role as a worship leader is light. Even so, I go home afterwards and take a four-hour nap in the afternoon.
I’m continuing to find that living within unaccustomed limits – even in times when I’m feeling otherwise pretty good – is all part of the cancer experience. Life goes on, though, and the best thing to do is to try to keep up as normal a routine as possible, making small adjustments as necessary.
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